Kidney Stones Rock my World
Snippets of my life with chronic kidney stones and Medullary Sponge Kidney.
Monday, March 14, 2011
Backache, Surprise Kidney Stone
I had a backache this past weekend. It was hurting enough to take my breath away at times. It never occurred to me it could be a stone. I took ibuprofen thinking I hurt my back. I went for a walk in the woods and never let it get the best of me. Last night I noticed that I passed a big kidney stone. It never ceases to amaze me that I sometimes don't relate my pain to a kidney stone. I feel much better today.
Friday, March 4, 2011
How do you do your daily responsibilities when you are in pain?
I am feeling better and I am getting a lot done finally. When I have kidney pain or kidney stone pain I have to take strong medicine which interferes with my daily activities. I am learning to work through the pain at times, but I rely on my great kids more than I would like too have to. They are great, but they are children and they need their mom to be healthy and active. I try to make up for the time I am sick in bed by doing extra things when I feel well.
How do you cope? Please post your comments below.
How do you cope? Please post your comments below.
Sunday, February 27, 2011
Doing Great, Pain Free for Days
I have been pain free for days now.(I did have a bout of kidney pain on Thursday)It has been more than a week that I have felt healthy and have even been doing some walking on a treadmill.
I have been getting a steady stream of comments on OH NO! A KIDNEY STONE. Two people have had bad parathyroids. I will have to do more research into the parathyroid. Check back soon for more information on the parathyroid and its role in kidney stone production.
I have been getting a steady stream of comments on OH NO! A KIDNEY STONE. Two people have had bad parathyroids. I will have to do more research into the parathyroid. Check back soon for more information on the parathyroid and its role in kidney stone production.
Thursday, February 17, 2011
No My Daughters Did Not Inherit MSK!
Thankfully I got the results of the ultrasounds the girls took yesterday and their kidneys are both normal. MSK is congenital but they do not know yet if it is genetic. We will get Joseph tested to make sure his kidneys are normal too.
This is such a relief to us and the girls. They see me suffer and now they don't have to worry that that will be their future too.
This is such a relief to us and the girls. They see me suffer and now they don't have to worry that that will be their future too.
Wednesday, February 16, 2011
Did My Kids Inherit MSK?
Today I took my two girls for ultrasounds of their kidneys to see if they inherited Medullary Sponge Kidney disease. Hopefully the ultrasounds will be normal, if not at least we have the knowledge to prevent them from forming the stones in the first place. We are pretty nervous about the outcome of the tests. My 10 year old son also wants to be tested, once he heard there is a test. I will ask the doctor when she calls with the girls' results. I got to sit in and watch the ultrasounds, but do not know how to interpret them. It was frustrating not to know right away. At least their kidneys do not look like mine do on ultrasound.
Monday, February 14, 2011
Stent removal
Well, I finally got the stent out this afternoon. Dr. Perez and his nurses were very patient about my anxiety. It went smoothly. They numbed me but I still felt them pulling it out. Ugh. Greg held my hand and watched the video monitor...I kept my eyes closed. I am a big chicken about getting stents removed.
On a positive note, I have had NO pain on my right side for a few months. Maybe the pain on my left side will stay away now that I have had the lithotripsy and the stent is gone. I am looking forward to being pain free!
On a positive note, I have had NO pain on my right side for a few months. Maybe the pain on my left side will stay away now that I have had the lithotripsy and the stent is gone. I am looking forward to being pain free!
Sunday, February 13, 2011
2 Days of Pain
Well, Friday evening and Saturday were pretty painful for me. I had to use Dilauded and a heating pad and I was mostly laying around in pain even with the dilauded(which is related to morphine and very strong). Today I am not in pain. I am SO looking forward to getting this stent out tomorrow and hopefully being pain free again. This has been a long hard recovery this time. I hope this is the last time, but I doubt it.
My husband, Greg, always comes with me to get the stent removed. I am always scared and he holds my hand. I hate that they do it awake. It is never as bad as I fear, but I still dread the actual procedure. The doctor inserts a cystoscope into my bladder and using the camera, finds the end of the stent and pulls it out. I wish they put me out for it.
2:30 tomorrow, only 24 more hours with this stent, thank God.
My husband, Greg, always comes with me to get the stent removed. I am always scared and he holds my hand. I hate that they do it awake. It is never as bad as I fear, but I still dread the actual procedure. The doctor inserts a cystoscope into my bladder and using the camera, finds the end of the stent and pulls it out. I wish they put me out for it.
2:30 tomorrow, only 24 more hours with this stent, thank God.
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